Sometimes you need to get up close to see what's really needed
There is power in the stories we share. Here, you can learn about Perth Children’s Hospital Foundation from the stories we and others tell.
Meet the children your generous donations support directly—hear their stories, meet their families, and see the impact the Foundation has on these young lives. News and media coverage give us the opportunity to share our stories with the broader community, important for continuing to garner support for those who need it the most. Our blog page is a place where we share Foundation news that matters the most to the people we support, our generous donors, and the broader WA community.
Lily is a happy, confident 12-year-old who is now enjoying a more regular childhood. It hasn’t always been this way. Lily was born with Trichohepatoenteric syndrome, a condition so rare that it only occurs in one person in a million. The extremely rare syndrome affects the hair, liver and intestines. Born prematurely at 34 weeks,
WA’s much needed children’s hospice is a step closer thanks to the generosity of Wembley man, John Street. Known as a kind and humble man, the late Mr Street wanted his multi-million estate to be left to something substantial that would benefit society for years to come. Mr Street had a modest upbringing and was
World-first Rare Care Centre will coordinate rare disease care at Perth Children’s Hospital Western Australia is taking a global leading role in establishing a Rare Care Centre that will provide a holistic model of care for children with rare and undiagnosed diseases. Based at Perth Children’s Hospital, the Centre has secured funding from leading WA
Researchers at Perth Children’s Hospital have completed a pilot study which involved the implementation of a surfing intervention with cystic fibrosis and their families. Funded by Perth Children’s Hospital Foundation, this study uses the benefit of physical exercise to help benefit kids who are living with chronic conditions, such as cystic fibrosis (CF). Research has
Mary is 9 and she has cystic fibrosis. There is currently no cure. However, by funding important research and innovative technology, Perth Children’s Hospital Foundation helps fund clinicians who improve Mary’s quality of life, extend her life expectancy, and keep her out of hospital. Like many kids with cystic fibrosis, Mary was diagnosed through a
The day of Maddie’s birth was a blur for her mum Mary and dad Luke. Immediately, their tiny baby had to be transferred to Perth Children’s Hospital and then into emergency surgery to unblock her intestines. Trying to make sense of Maddie’s treatment and diagnosis, while caring for their two older boys, was incredibly hard.