Tag: Cystic Fibrosis

Surfing Intervention
Positive Patient Experiences

Surfing Intervention Pilot Project

Researchers at Perth Children’s Hospital have completed a pilot study which involved the implementation of a surfing intervention with cystic fibrosis and their families. Funded by Perth Children’s Hospital Foundation, this study uses the benefit of physical exercise to help benefit kids who are living with chronic conditions, such as cystic fibrosis (CF). Research has

Cystic Fibrosis Perth Children's Hospital
Positive Patient Experiences

Mary’s Story

Mary is 9 and she has cystic fibrosis. There is currently no cure. However, by funding important research and innovative technology, Perth Children’s Hospital Foundation helps fund clinicians who improve Mary’s quality of life, extend her life expectancy, and keep her out of hospital. Like many kids with cystic fibrosis, Mary was diagnosed through a

Luke Toki Cystic Fibrosis
Ground-Breaking Research

Maddie’s Story

The day of Maddie’s birth was a blur for her mum Mary and dad Luke. Immediately, their tiny baby had to be transferred to Perth Children’s Hospital and then into emergency surgery to unblock her intestines. Trying to make sense of Maddie’s treatment and diagnosis, while caring for their two older boys, was incredibly hard.

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