WA Children's Hospice

Project.

The Foundation on the frontline

in-proud-partnership

“We are delighted to partner with the McGowan Government for this project. We believe the facility with all the care of a hospital and the feel of a home is long overdue and will add a wonderful legacy to the healthcare landscape for children and their families. We couldn’t be more thrilled to be involved with this project which will make a difference to so many lives for years to come and are eager to get started.”

Hon. Ian Campbell, Chairman Perth Children’s Hospital Foundation

About the Project

In proud partnership with the Child and Adolescent Health Service (CAHS), we are pleased to announce the Perth Children’s Hospital Foundation funding of a brand new children’s hospice in Perth, WA. This hospice will provide care for children aged from birth to 18 years who have a life-limiting condition and are requiring palliative care. We know this will make a significant difference to the lives of WA families requiring these services.

There is currently a widely acknowledged gap in the provision of children’s respite and end of life services in Western Australia.

Although a child might not receive a diagnosis of a life limiting condition, their journey could span weeks, months, or even years. This often results in a great stress on families for a sustained period of time and impacts their resources, relationships and well-being.

We are so excited to take you on this journey in proud partnership with Child and Adolescent Health Service (CAHS). To keep up to date, follow along on our social channels.

Children's Hospice Project Design

The hospice will be modelled on Bear Cottage in NSW as a home away from home environment. Ideally it will be a six-bed facility with adjoining family rooms. Every child’s room will be fitted with a hospital constituted bed and facilities. Other features will include a commercial kitchen, community living space, hydrotherapy pool, outdoor area and playground. The facility design will combine clinical and operational requirements in a quality architectural purpose-built facility that has a home-like feel offering flexibility of spaces, high amenity and is sympathetic to the surrounds.

The hospice will provide services in key areas:

  • Care for children who have a life limiting diagnosis with little prospect of being well and who require 24/7 care. The hospice will assume care of these children for a period of time allowing their families much needed respite.
  • End of life care for children with the safety net of clinical care in the comfort of a highly respectful and supported environment.
  • Support for the families of life limited children.
  • State-wide bereavement service for families following the death of a child.
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Architects concepts by Hassell

Children's Hospice Project Progress

Children's Hospice Project Publications

Media Monitoring & Updates

Media Release
Western Australia set to welcome first Children's Hospice
Read article
WA Today
WA's first children's hospice to care for terminally ill children
Read article
9 News Perth
Much needed help on the way for WA children suffering from life limiting illness
Watch Video
The West Australian
Sea views for kids' hospice
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Please direct any media inquiries to:

Caroline Webb
Head of Marketing
Perth Children’s Hospital Foundation
08 6456 5546
caroline.webb@pchf.org.au
Cait Woodward
Communications Manager
Child and Adolescent Health Service (CAHS)
08 6456 3278
cait.woodward@health.wa.gov.au

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Give the ultimate gift to help WA’s sickest children and their families.

Your donation is so important to help support this project and directly impact families who have children under palliative care.

 

Regular giving is one of the most effective ways you can support the children’s hospice.  Becoming a regular giver means you will be making a direct and ongoing impact to the sick kids of WA.

Regular giving is easy and flexible: each month your chosen amount is automatically debited from your credit card. You can increase, decrease or cancel your monthly donation at any time by contacting us.

We will send you a receipt every July for all your donations received in the previous financial year which you can then use for tax purposes.

Children's Hospice Project FAQ's

A paediatric hospice (children’s hospice) is dedicated to caring for children aged birth to 18 years and their families living with life-limiting conditions and requiring palliative care.

A children’s hospice provides paediatric palliative care 24 hours a day during a child’s stay. Paediatric palliative care enables the baby, child or young person to live in an environment where curative treatment can be part of their life, but not their entire focus. It aims to provide the best quality of life through a holistic approach which supports the physical, emotional, social and spiritual aspects of the child and their family.

Children’s hospices add value to care in a number of ways: symptom assessment and treatment, provision of respite care and supportive work with siblings, parents and grandparents. Furthermore, some children and families will choose a hospice as the preferred place for end of life care. Following the death of a child, bereavement care for families is an essential part of service provision.

There is a widely acknowledged gap in the provision of children’s respite and end of life services in Western Australia. Although a child might receive a diagnosis of a life limiting condition, their journey could span weeks, months or even years. This often results in a great stress on families for a sustained period of time and impacts their resources, relationships and well-being.

Three similar services exist on the east coast, providing an extensive range of services for families of children diagnosed with life-limiting conditions. They are Bear Cottage in NSW, Very Special Kids in Victoria and Hummingbird House in Queensland. Currently nothing of this nature exists in WA. Internationally, the children’s hospice model is recognised as a successful approach to care for children and families with life-limiting conditions. With Australia’s population of 23 million people, there are only three such centres whereas in the United Kingdom, with a population of almost 66 million, there are now over 40 similar centres for children.

Western Australia does not have a dedicated paediatric hospice facility. Currently, children under palliative care are provided services by the WA Paediatric Palliative Care Service at Perth Children’s Hospital. Although this service provides advice, support and liaison for children and families, there are only two options for care of children with life-limiting illnesses at home or at Hospital. Families who do not want their child to die at home can currently only be supported in hospital. There is currently no palliative out of home respite care for children in WA.

It is intended that the Foundation provides funding for the construction, fit-out and ongoing non-operational costs for the hospice. CAHS will be responsible for securing a suitable land holding, working with the State Government to build the Children’s Hospice of WA (Children’s Hospice), providing ongoing clinical funding, governance and overall management of the Children’s Hospice.

The Foundation is funding construction and fit-out of the children’s hospice.

It is intended that the Foundation provides funding for the construction, fit-out and ongoing non-operational costs for the hospice. CAHS will be responsible for securing a suitable land holding, working with the State Government to build the Children’s Hospice of WA (Children’s Hospice), providing ongoing clinical funding, governance and overall management of the Children’s Hospice.

It is anticipated the children’s hospice will open early 2023.

If you would like to show your support for the hospice through a donation you can go to the Foundation website pchf.org.au and make a donation or call the Foundation’s Head of Fundraising Heiko Plange on (08) 6456 5545.

For all other enquiries please contact the Child and Adolescent Health Service via email on CAHSInfrastructure@health.wa.gov.au.

Children’s hospices add value to care in a number of ways: symptom assessment and treatment, provision of respite care and supportive work with siblings, parents and grandparents, including:

  • Care for children who have a life-limiting diagnosis with little prospect of being well and who require 24/7 care. The Children’s Hospice will assume care of these children for a period of time allowing their families much needed respite.
  • Expert symptom assessment and management.
  • End of life care for children with the safety net of clinical care in the comfort of a highly respectful and supported environment.
  • Support for the families of life-limited children. Families often require physical and psychological care in a supportive environment.
  • Outreach and family support offered via telehealth. State-wide bereavement service for families following the death of a child.
  • The Children’s Hospice will also provide services including physiotherapy and massage, as well as specialised therapy such as music and play therapy.

The children’s hospice will be modelled on the ethos of Bear Cottage in NSW as a home away from home environment; close to the beach with a community garden. It will be a five to seven bed facility with adjoining family rooms.

Other features will include a main kitchen, dining and living space, playrooms, a spa area inclusive of hydrotherapy pool, outdoor living, play-space, gardens and seating, clinical spaces, car parking, and office and administrative spaces.

It is envisaged that the children’s hospice will open with five beds available for children with life-limiting illnesses. An additional two beds will be available if required.

Families will be supported by a team of clinical staff caring for the children and their families and staff who work on-site to provide non-clinical support.

The children’s hospice will open with five beds available for children with life limiting illnesses. An additional two beds will be available if required. The children’s hospice has been designed based on current and anticipated future needs. There is flexibility for minor changes, however, we would not expect any increase to the size of the building.

The children’s hospice site is located within Allen Park situated at Odern Crescent Swanbourne. The site is the former Swanbourne Bowling Club, immediately to the north of the current WA Bridge Club.

Site selection criteria was established to determine the children’s hospice site.

  • Convenient to the Perth Children’s Hospital, but not on the campus.
  • Central to the metropolitan region, optimising accessibility.
  • Approximately half a hectare in area.
  • Suitable for the construction of a new, purpose-built building without an ‘institutional’ feel.
  • Located in an essentially residential area but with opportunity for separate accesses for visitors and services.
  • Convenient to local amenities such as a coffee shop, corner store or park, enabling community interaction.
  • Located in a natural setting preferably close to the water, providing a serene, leafy environment and opportunities for walks and/or nature play.
  • Government owned and available, in terms of tenure, in the short-term.

The former Swanbourne Bowling Club site in Odern Crescent has been identified as the preferred site due to its location near the water and Perth Children’s Hospital, size, the absence of existing structures, residential context, proximity to local amenities, its natural setting, high amenity and the relatively simplicity of the tenure arrangements.

Based on the current concept, the building footprint is approximately 1,200m² (plus landscaped gardens, driveway and proposed playground).

The proposed site area for the children’s hospice is 5,000m². There will also be a significant area for community gardens.

There is a formal opportunity for the community to provide feedback on the proposal as part of a stakeholder consultation to be undertaken in respect of the Management Order amendment (creating the hospice site) and the development application for the Children’s Hospice itself.

The Management Order was advertised in the West Australian newspaper on Tuesday 8 September 2020 as well as in Community newspapers. As part of this consultation process respondents have 30 days to submit their response.

In addition, a Stakeholder Reference Group (SRG) will be established as a forum for relevant and interested parties to be involved in the hospice project within a defined Terms of Reference. The SRG will comprise selected members across different groups, such as clinical groups, community groups, neighbouring sport facilities and parents with personal experiences of children with life-limiting illness. 

There will be opportunities for the community to support the hospice through donations, both monetary and gifts. There are also possibilities to volunteer at the children’s hospice.

A Traffic Management Plan will be implemented for the children’s hospice to ensure safety and efficiency of vehicular and pedestrian traffic. Appropriate signage will be adopted, and the hospice will have a designated parking. Due to the small scale of the children’s hospice, the traffic impacts are expected to be minimal.

Due to the small scale and discrete location of the children’s hospice, the noise impacts are expected to be minimal. Best practices and standard guidelines will be adopted to ensure minimal to no impact on the surrounding area.

At a Stakeholder Reference Group meeting, the Palliative Care clinical team and parents who have experienced the loss of a child, commented that the location may be of benefit to children staying at the hospice due to relationships that will be established with the surrounding neighbours, including the Special Air Service Regiment based at Campbell Barracks. The proximity to the Barracks will provide the children with an opportunity to see aircraft heading in and out of the Barracks and provide a welcome distraction from their circumstances but will not impact the comfort or security that the hospice will provide.

It is the experience of other hospices that ambulance activity is infrequent and is restricted largely to transportation of children and families (if required). It is extremely rare for an ambulance with full sirens to attend a hospice.

Technical specialist consultants will be engaged in the design of the children’s hospice to ensure best practices are adopted during construction and ongoing operations.

The proposed children’s hospice site is currently a vacant site. The site area is approximately 0.5ha (5,000m²) and represents a very small component (2.1%) of the Master Plan area, which covers approximately 24ha (excluding the foreshore area).

A community garden of approximately 0.3ha (3000m
²) will also be implemented.

Technical specialist consultants will be engaged throughout the design and approval stage to minimise impacts to the surrounding Allen Park.

The building will also be sensitively designed to ensure the building integrates with the surrounding open space.

Construction and fit out is estimated to commence in July 2021 with completion by December 2022 (18 months).

The children’s hospice will not compromise the privacy of neighbouring households. It is a low scale facility in a discrete location, removed from neighbouring households.

Due to the small scale of the project, the impacts on the surrounding area during construction are expected to be minimal. However, best practices will be implemented to reduce potential inconvenience and risks to community, workers and bypassing vehicular or pedestrian traffic. Ongoing stakeholder consultation will be undertaken to account for interests and concerns in relation to the project.

Site will be secured during construction with appropriate surveillance and security measures will be adopted to ensure safety of workers and community.

There will be an opportunity to donate a sum of money towards the children’s hospice or a gift in your will via the children’s hospice homepage https://pchf.org.au/childrens-hospice-project/. Alternatively you can contact our Head of Fundraising Heiko Plange on t: (08) 6456 5545 to discuss your donation.

Volunteering opportunities in the children’s hospice will be released closer to opening and will thereafter be advertised on an on-going basis.

Employment opportunities in the children’s hospice will be released closer to opening and will thereafter be advertised on an on-going basis.

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