Every four days, a baby in Australia is born with cystic fibrosis.
In total around 1 million Australians carry the gene, often without knowing their risk of passing a deadly disease on to their children. The disease clogs a child’s lungs with mucus, along with their digestive systems.
For Maddie, every single day, even special occasions, has to revolve around therapies to keep her alive. And there is no saying how long these will work with only half of people with cystic fibrosis living past 40.
“I just hope and dream that Maddie can outlive me!” – Luke Toki, Maddie’s Dad.
Currently, there is no cure for Maddie, but there is still hope.
Your gift today will help fund ground-breaking research projects and innovative equipment & technology so kids like Maddie with cystic fibrosis can not only breathe easier but live longer.
Help change a life. Make a donation today.
Single Donation – Foundation
Donations of $2 and over are tax deductible.
Impact of your support
The day of Maddie’s birth was a blur for her parents Mary and Luke Toki. Immediately, their tiny baby had to be transferred to Perth Children’s Hospital, then into emergency surgery to unblock her intestines… read more.
Researchers at Perth Children’s Hospital have completed a pilot study which involved the implementation of a surfing intervention with cystic fibrosis & their families, funded by Perth Children’s Hospital Foundation… read more.
Like many kids with cystic fibrosis, Mary was diagnosed through a new-born screening test. Each day, her parents do everything they can to maintain her health, so she can focus on just being a kid… read more.
Other ways to support
Head into your local Big W Store between 10 March – 16 April and purchase a $5 or $2 token at the check-out to help support and give kids living with cystic fibrosis a longer life. Find your local store here.